uae boy’s 13year medical ordeal ends
Last Updated : GMT 09:03:51
Almaghrib Today, almaghrib today
Almaghrib Today, almaghrib today
Last Updated : GMT 09:03:51
Almaghrib Today, almaghrib today

UAE boy’s 13-year medical ordeal ends

Almaghrib Today, almaghrib today

Almaghrib Today, almaghrib today UAE boy’s 13-year medical ordeal ends

Khalid Mohammad with father Abdullah Salim Al Kindi (left) and Anupam Sibal (right), group medical director at Apollo Hospitals, in New Delhi on Tuesday.
Abu Dhabi - Arab Today

From the time he was born, Khalid Abdullah, 13, had been spending around 10 to 15 hours a day under a phototherapy machine due to a rare liver disease that afflicts one in a million children.

Called the Crigler Najjar Syndrome or CNS, the condition occurs due to the absence of an essential enzyme, GT, in the liver at birth. This deficiency results in a toxic form of bilirubin to rise in the blood to a very high level, which can seep into the brain tissue and produce irreversible complications, according to doctors.

Continuous phototherapy is the only way to prevent brain damage and hearing loss due to this condition, according to experts.

Khalid, born to a Yemeni father and an Emirati mother in the UAE, was depending on phototherapy, or light therapy, that administers doses of bright light to treat his rare medical condition. His eyes and body were mostly yellow [because of jaundice, a constant effect of CNS]. But last week, the teenager, who studies in the 7th grade in a Sharjah school, experienced a breakthrough in his condition when he underwent a 12-hour-long liver transplant surgery at the Indraprastha Apollo Hospital in New Delhi, the Indian capital.

His father, Abdullah Salim Al Kindi, donated a part of his liver to his son

“With great happiness, I called my family members back home and told them to remove the [three phototherapy] machines from the house [as we no longer need them],” Al Kindi, 47, told Gulf News on the phone from New Delhi on Thursday.

A smiling Khalid greeted the doctors after the surgery. “When Khalid saw his eyes were white, he smiled. Because he has always seen his eyes yellow. His smile was the most gratifying,” a doctor told Gulf News on phone from New Delhi.

“He can now enjoy an excellent quality of life,” said Prof Anupam Sibal, group medical director and senior paediatric gastroenterologist, Apollo Hospitals Group.

Of the 2,800 liver transplants conducted by the hospital since 1998, 220 were performed on children, of which, five were for this rare condition, Dr Sibal said. “Of the other four children, two were from Pakistan, one from Qatar and one from India,” Dr Sibal added.

A liver transplant surgery costs $40,000 (Dh146,800) at the hospital, he said.

Due to his condition, Khalid could not attend school for a while but now he is eager to get back to classes, said his father. “He is excellent in his studies — always among the toppers in his class.”

It was a taxing schedule young Khalid had followed everyday. Though he spent some part of the day playing outside with his friends, at night, he would need to be under the phototherapy machine, “sometimes for 10 to 15 hours”, said Al Kindi, who works as a cashier at Dubai Health Authority.

Al Kindi has been living in the UAE for 19 years. He and his Emirati wife, a teacher, will be staying for three more weeks in New Delhi with their son for further check-ups.

Though Khalid has been discharged from the hospital, he needs regular check-ups every two-three days for 21 days, informed the father.

“We are waiting to fly back to a happy life in the UAE,” Al Kindi said.

Phototherapy

It is the most common treatment to reduce high bilirubin levels that cause jaundice in a newborn. In its standard form, the baby lies in a bassinet or enclosed plastic crib (incubator), and is exposed to a type of fluorescent light that is absorbed by the baby’s skin

source : gulfnews

almaghribtoday
almaghribtoday

Name *

E-mail *

Comment Title*

Comment *

: Characters Left

Mandatory *

Terms of use

Publishing Terms: Not to offend the author, or to persons or sanctities or attacking religions or divine self. And stay away from sectarian and racial incitement and insults.

I agree with the Terms of Use

Security Code*

uae boy’s 13year medical ordeal ends uae boy’s 13year medical ordeal ends

 



Name *

E-mail *

Comment Title*

Comment *

: Characters Left

Mandatory *

Terms of use

Publishing Terms: Not to offend the author, or to persons or sanctities or attacking religions or divine self. And stay away from sectarian and racial incitement and insults.

I agree with the Terms of Use

Security Code*

uae boy’s 13year medical ordeal ends uae boy’s 13year medical ordeal ends

 



Almaghrib Today, almaghrib today Skincare PR Performance Full Year 2017

GMT 09:22 2018 Monday ,22 January

Skincare PR Performance Full Year 2017
Almaghrib Today, almaghrib today New hunt for flight MH370 gets under way

GMT 11:03 2018 Wednesday ,24 January

New hunt for flight MH370 gets under way
Almaghrib Today, almaghrib today Modern colorful bedroom renovation

GMT 10:57 2017 Thursday ,21 December

Modern colorful bedroom renovation
Almaghrib Today, almaghrib today Puigdemont candidate for Catalan president

GMT 13:56 2018 Tuesday ,23 January

Puigdemont candidate for Catalan president
Almaghrib Today, almaghrib today Turkey detains dozens more

GMT 10:47 2018 Wednesday ,24 January

Turkey detains dozens more
Almaghrib Today, almaghrib today The Rake announces editorial updates

GMT 10:46 2018 Tuesday ,16 January

The Rake announces editorial updates
Almaghrib Today, almaghrib today Europe brings on charm and blue skies

GMT 11:51 2018 Tuesday ,23 January

Europe brings on charm and blue skies
Almaghrib Today, almaghrib today For the Variety of Interior Design Styles

GMT 10:46 2017 Tuesday ,19 December

For the Variety of Interior Design Styles
Almaghrib Today, almaghrib today US Christian tourists see deep meaning

GMT 13:44 2018 Monday ,22 January

US Christian tourists see deep meaning
Almaghrib Today, almaghrib today Amazon to open first cashierless shop

GMT 10:03 2018 Tuesday ,23 January

Amazon to open first cashierless shop

GMT 10:39 2017 Friday ,20 October

OPEC chief welcomes rebalancing of oil market

GMT 08:52 2017 Sunday ,29 October

Controversy-battered Uber hires

GMT 14:30 2017 Tuesday ,26 September

Ukraine's ex-PM to sue Russia in European rights court

GMT 01:21 2017 Sunday ,12 March

Congress proves exit polls wrong in Punjab

GMT 09:01 2017 Wednesday ,29 November

Consumer agency power struggle underscores Trump

GMT 20:54 2017 Saturday ,28 October

Bus plunges into river in Nepal, killing at least 31

GMT 14:13 2017 Friday ,01 September

US labor board slaps Tesla with complaint

GMT 20:45 2017 Wednesday ,16 August

Abrahon happy for joining league

GMT 09:07 2017 Tuesday ,26 September

Actress Hind Sabry says her dream came true

GMT 08:12 2017 Tuesday ,07 November

UN aid flights blocked from Yemen

GMT 16:11 2017 Wednesday ,13 September

US reports rising income, falling poverty in 2016

GMT 10:42 2017 Friday ,20 October

George W Bush slams Trump-era politics

GMT 07:45 2017 Saturday ,22 April

Lekaa Sowedan is optimistic of future of cinema

GMT 09:50 2017 Tuesday ,12 December

Palestinians miss major reconciliation deadline

GMT 15:50 2017 Sunday ,10 December

China's consumer price inflation slows in November

GMT 06:54 2017 Tuesday ,14 March

Lekaa Sowedan businesswomen in “Phobia”

GMT 15:12 2017 Thursday ,07 December

Real deal Ronaldo set for fifth Ballon d'Or

GMT 15:33 2012 Tuesday ,28 August

More cases of anthrax confirmed in Siberia

GMT 13:57 2014 Wednesday ,11 June

Murray hopes Mauresmo trial is a hit

GMT 07:33 2012 Sunday ,15 April

S Africa\'s Zuma to wed fourth wife
Almaghrib Today, almaghrib today
 
 Almaghrib Today Facebook,almaghrib today facebook  Almaghrib Today Twitter,almaghrib today twitter Almaghrib Today Rss,almaghrib today rss  Almaghrib Today Youtube,almaghrib today youtube  Almaghrib Today Youtube,almaghrib today youtube

Maintained and developed by Arabs Today Group SAL.
All rights reserved to Arab Today Media Group 2021 ©

Maintained and developed by Arabs Today Group SAL.
All rights reserved to Arab Today Media Group 2021 ©

.almaghribtoday .almaghribtoday .almaghribtoday .almaghribtoday
almaghribtoday almaghribtoday almaghribtoday
almaghribtoday
بناية النخيل - رأس النبع _ خلف السفارة الفرنسية _بيروت - لبنان
almaghribtoday, Almaghribtoday, Almaghribtoday